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Research project The purpose of this project is to understand and explain regional decision making regarding prenatal diagnostics of Down Syndrome. Such knowledge is of importance for stakeholders affected by this practice.
This 1 + 1 year project is carried out via qualitative case studies of decision processes in at least 6 Swedish regions.
The project is of importance for stakeholders within the Down Syndrome community, e.g., NGOs, parents and individuals with Down Syndrome. It is also relevant for a more general discussion on the societal value of diversity and openness. Prenatal diagnostics have become much debated recently with the introduction of the simple NIPT- test, an ordinary maternal blood test that gives information of the fetus’s entire genome. The possibility to screen for everything calls into question why Down Syndrome, a relatively mild condition, could be the focus of screening.