The databases at CEDAR are meant to be used for national and international research. If you, as a researcher, would like to know more about the databases or learn how to make a data retrieval we welcome you to contact our coordinator.
The databases at CEDAR are both complex and very rich in detail. If you are interested in a data retrieval we will help you to structure your data set and specify the variables needed. Together we will discuss what kind of data you are in a need of in order to answer your research questions, and then we will write this down in, what we call, a specification. The specification describes the data set on a variable level, sets the rules of the data and defines more specifically the geographic area, time period and the cohort of the study.
It is important to us to have high quality on our service as well as on data retrievals. In order to accomplish the quality goal both system developers and research commissioners are working together with the data retrievals; developing, verifying, and documenting the data retrieval before it is being sent to the researcher.
Since every data retrieval is unique it is difficult to suggest a set price. The price depends on its size and complexity; if the retrieval will consist of several data files, many generated variables etc. We recommend you to contact us so we can give you an offer based on the data you have specified.
When you have received a data retrieval from us you have to sign a legal contract, stating the conditions for usage of the material.
When ordering data from the database POPLINK, which contains data on now living persons, the data retrieval and the specification will be reviewed, evaluated, and approved by CEDAR's Approval Committee (Tillståndsgruppen).
In cases where the data retrieval will include sensitive personal data, the researcher (research group) is also required to get an approval from the Swedish Ethical Review Authority (Etikprövningsmyndigheten), according to the European General Data Protection Regulation.
This applies cases when CEDAR's Approval Committee is uncertain about whether the data retrieval should undergo an ethical review or not, as well. Retrievals that do not need to undergo an ethical review does only need to be approved by CEDAR's Approval Committee.