Research project Experiences of stigma can hinder self-management and worsen the health of people with chronic obstructive pulmonary disease, COPD. Self-management is critical to improve health, prevent periods of deterioration, and reduce healthcare costs. There is a lack of knowledge about how people with COPD deal with stigma in relation to self-management, what support they get, as well as interventions to counter the negative impact of stigma on self-management.
The aim is to develop and evaluate an intervention to counter the impact of stigma on self-management. It includes three sub-studies: 1) Workshop study about how people with COPD, relatives, and healthcare professionals experience and deal with COPD-related stigma in relation to self-management, 2) Co-creation study to develop an intervention, and 3) Feasibility study to evaluate the intervention. Improved self-management can improve health and reduce the burden on the healthcare system. Involving relevant in the development can facilitate a successful implementation of the intervention.
Background: Stigma is a barrier to self-management among people with chronic obstructive pulmonary disease, COPD. Self-management is crucial to improve health, prevent exacerbations and decrease healthcare costs. Still research about stigma, self-management and related interventions is missing.
Purpose: The purpose is to develop and assess the feasibility of an intervention to counter the impact of stigma on self-management in people with COPD.
Workplan: The project consists of three consecutive studies, where the findings from each study will contribute to the subsequent studies:
1) Workshops to explore how people with COPD experience and deal with stigma and self-management and how relatives and healthcare professionals experience and deal with stigma when supporting self-management.
2) Co-creation to develop an intervention to counter the impact of stigma on self-management, with key stakeholders including people with COPD, relatives, healthcare professionals, managers, and decision makers.
3) Combine qualitative and quantitative methods to assess the feasibility of the new intervention and study procedure within healthcare to prepare for an upcoming randomized controlled trial.
The project is financed by The Swedish Heart-Lung Foundation, The Swedish Research Council, and The Strategic Research Area, Health Care Science (SFO-V).
Significance: Within this project, we will combine the two research fields of stigma and self-management in a new way. In addition, we will involve stakeholders in the development of an innovative intervention.
