Person-centred information to parents in paediatric oncology - the PIFBO study

Research project This study is a randomized-controlled trial of a person-centred information intervention aimed at parents of children with cancer.

In this project, we have developed an programme for person-centred information to parents of children with cancer. This programme is currently tested on a group of parents. We examine if the programme can improve the parents' psychosocial well-being (e.g. stress, anxiety, and satisfaction with information).

Head of project

Anders Ringnér Research fellow

Project overview

Project period:

2008-09-01 – 2018-12-31

Funding

Finansår , 2008, 2009, 2010, 2011, 2012, 2013, 2014, 2015, 2016

huvudman: Lilian Jansson, finansiar: Barncancerfonden, y2008: 650000, y2009: 650000, y2010: , y2011: , y2012: , y2013: , y2014: , y2015: , y2016: ,

huvudman: Anders Ringnér, finansiar: Barncancerfonden, y2008: , y2009: , y2010: , y2011: , y2012: , y2013: , y2014: 400000, y2015: 400000, y2016: 400000,

Participating departments and units at Umeå University

Department of Nursing

Research subject

Cancer, Public health and health care science

Project members

Ulla Hällgren Graneheim Timlärare

Email

+46 90 786 92 58

Project description

Parenting a child with cancer is a stressful and demanding situation, and problems such as stress, depression, and anxiety are more common in parents of children with cancer compared to parents of healthy children. Interventions for improved information have been suggested as a means of protecting parents from excessive stress, but few such interventions have been reported in the scientific literature.

The aim of this project is to evaluate an intervention for person-centred information to parents of children with cancer that consists of four sessions with children’s nurses trained in the intervention method.

The study is a multi-centre RCT with illness-related parental stress as the primary outcome. Secondary outcomes are post-traumatic stress symptoms, anxiety, depression, satisfaction with information, expected and received knowledge, and experiences with health care providers. In parallel, a process evaluation is performed to describe experiences and contextual factors.