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The Heart failure and Palliative care Programme

Research project Patients with severe heart failure have as many severe and distressing symptoms as many patients with cancer but yet do not have equal access to palliative care. European Society of Cardiology (ESC) guidelines have concluded that there is a great need for new models of end of life management

The Heart failure and Palliative care Programme is a three-year project in Sweden. The overall aim is to develop, implement and evaluate a model that integrates heart failure care and palliative advanced home care for patients with severe chronic heart failure. The primary aim is to study the effects on patients' symptom burden, quality of life and activities of daily living. A randomized controlled clinical study is planned. Patients (n=62) with a confirmed diagnosis and with NYHA III-IV symptoms and at least one of following criteria will be included; 1)At least one episode of worsening heart failure that resolved with injection / infusion of diuretics or the addition of other heart failure treatmenin the last 6 months and regarded optimally treated according to the responsible physician. 2) Need for infusions-treatment. 3) Chronic poor quality of life (VAS

Head of project

Project overview

Project period:

2011-08-18 2013-12-31

Funding

Finansår , 2009, 2010, 2011

huvudman: VLL, finansiar: SKL, y2009: 3995, y2010: 3995, y2011: 3995,

huvudman: , finansiar: VLL-FOU, y2009: , y2010: 160, y2011: ,

Participating departments and units at Umeå University

Department of Nursing

Research subject

Public health and health care science

Project description

The Heart failure and Palliative care Programme is a three-year project in Sweden. The overall aim is to develop, implement and evaluate a model that integrates heart failure care and palliative advanced home care for patients with severe chronic heart failure. The primary aim is to study the effects on patients' symptom burden, quality of life and activities of daily living. A randomized controlled clinical study is planned. Patients (n=62) with a confirmed diagnosis in accordance with the criteria proposed by the European Society of Cardiology and with NYHA III-IV symptoms and at least one of following criteria will be included; 1)At least one episode of worsening heart failure that resolved with injection / infusion of diuretics or the addition of other heart failure treatmenin the last 6 months and regarded optimally treated according to the responsible physician. 2) Need for infusions-treatment. 3) Chronic poor quality of life (VAS < 50) 4) Signs of cardiac cachexia (involuntary non-oedematous weight loss ≥ 6% of total body weight within the last 6-12 months) 5) less than one year life expectancy The participants will be randomized to intervention or control group. The intervention consist of a multidisciplinary approach and collaboration between specialist palliative and heart failure caregivers, in a shared structured person-centred and identity-promoting care at home during six months. Usual care is performed for the control group.