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April 23 - Ethics in Indigenous Research: Closing the Gap in Sweden

Welcome to a seminar on ethics in Indigenous research. The seminar will be held on Thursday, April 23, from 13:00 to 16:00 at Umeå University in Naturvetarhuset, NAT.D.300.

Sweden still lacks nationally established guidelines specifically for ethics in Indigenous research, despite such guidelines now existing in our Nordic neighboring countries and in other comparable contexts.

This seminar brings together leading researchers and stakeholders for a dialogue about the guidelines that do exist and how they were developed. The aim is to identify constructive steps to strengthen ethically responsible research in Sápmi, to reinforce reciprocal relationships between Sámi communities and academia, and to contribute to better conditions for knowledge production that respects Indigenous peoples’ right to self-determination.

The seminar is held in Naturvetearhuset, NAT.D.300

Registration 

Sign up here

Program

Times are subject to change

13:00–13:15 Welcome and opening remarks

Vice-Chancellor of Umeå University, Tora Holmberg

Agneta Sandström, Chair of the Health, Elderly and Sports Committee, the Sámi Parliament of Sweden

Jon Petter Stoor and Christina Storm Mienna

13:15–13:30 Elizabeth Rink – Greenlandic research guidelines: lessons for Sweden

13:30–13:45 Julieann Baldwin – Research ethics with Indigenous communities in the US

13:45–14:00 Jon Petter Stoor – Norwegian guidelines on ethics in Sámi health research

14:15–14:25 Christina Storm Mienna – NordForsk’s ethical guidelines for research in Sápmi

14:25–14:45 Coffee break

14:45–15:00 Sanna Valkonen – Ethical guidelines in research with Sámi communities in Finland

15:00–15:10 Per Axelsson – GIDA Sápmi

15:10–15:40 Panel discussion (30 min): Moderator Kristina Sehlin MacNeil

15:40–15:50 Audience questions and moderated discussion

15:50–16:00 Closing remarks and ways forward

Keynotes

The programme will include presentations by the speakers listed below and a final version will be presented closer to the event.

Julie Baldwin is the Executive Director of the Center for Community Health and Engaged Research (CHER) and a Regents’ Professor in the Department of Health Sciences at Northern Arizona University (NAU).

She was inducted into the National Academy of Medicine in 2023. As a citizen of the Cherokee Nation of Oklahoma, she has made a life-long commitment to advocating for health promotion programs for children, adolescents, elders, and families.

Elizabeth Rink is a Professor of Community Health in the Department of Human Development and Community Health, College of Education, Health and Human Development at Montana State University.

Her research addresses mental health, substance use, and reproductive health disparities. She collaborates with Indigenous communities in Montana and the Arctic, focusing on the integration of Indigenous methodologies, mixed-methods approaches, multilevel interventions, and participatory research ethics.

Jon Petter Stoor  (PikkuNilsá Ánde Biehtár) is a Sámi and Swedish clinical psychologist and researcher, born in Giron as part of Laeváš čearru, and Assistant Professor of Indigenous public health at Umeå University. His work bridges the social and medical sciences with a focus on Sámi health in Sweden and Norway, including suicide prevention, youth wellbeing, and population-based health studies.

He is one of the founders of the research group Lávvuo - Research and Education for Sámi health.

Sanna Valkonen is a Sámi scholar from Northern Finland. She is a Professor of Sámi research at the University of Lapland and an Adjunct Professor of research on Sámi society at the Giellagas Institute (University of Oulu).  
She’s specialized in developing the field of social scientific Sámi research, drawing on community-based engagement, and director of the Centre of Excellence for Multibeing Justice in Indigenous Societies, funded by the Research Council of Finland. Her current research focuses on Sámi political thought. 

Christina Storm Mienna is the Director of Várdduo - Centre for Sámi Research and Associate Professor of Odontology at the Faculty of Medicine, Umeå University. Her research interests focus on Indigenous health and wellbeing. She serves as a board member on the Research Committee at Sámi Norwegian National Advisory Unit on Mental Health and Substance Use (SANKS) and the Research ethical committee at Sámi University of Applied Sciences in Norway. 

She represents Sweden in the Arctic Council’s SDWG Arctic Human Health Expert Group (AHHEG) and in IASC Standing Committee on Indigenous Involvement. She is a member of NordForsk working group on guidelines for Indigenous research.

Per Axelsson is an Associate Professor of History at Umeå University. His research and teaching interests primarily focus on Sámi health, medical history, and Indigenous research. He has also published on the history of polio epidemics and the development, role, and identity formation of population statistics in society.  

He is a founding member of GIDA Sápmi, serves as a teacher representative on the University Board at Umeå University and is a scientific member of the Swedish Ethical Review Authority.

Senast uppdaterad: 2026-04-22