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Bild: Health CASCADE

ECHO-COPD project

Forskningsprojekt In this study, we plan to develop a sustainable eHealth strategy for the care of people with COPD with frequent exacerbations through a co-creation process with stakeholders, i.e. patients having experienced hospitalization due to exacerbations in their COPD, caregivers, healthcare professionals (occupational therapists, physicians, nurses, dietitians, physiotherapists), managers, and policy-makers.

Chronic obstructive pulmonary disease (COPD) is one of the most common chronic diseases in Sweden and the third most common cause of death globally. This study is part of the Health CASCADE program.

Projektansvarig

Karin Wadell
Professor med förenad klinisk anställning
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090-786 98 87

Projektöversikt

Projektperiod:

Startdatum: 2021-01-01

Medverkande institutioner och enheter vid Umeå universitet

Institutionen för samhällsmedicin och rehabilitering

Projektbeskrivning

ECHO-COPD project (Employment of Co-creation in eHealth tOol Development for people with COPD)

This study is part of Health CASCADE program. Health CASCADE is a Marie Skłodowska Curie Innovative Training Networks project funded by the European Union (H2020 MSCA ITN) (Project number 956501).

Health CASCADE is a consortium of high-profile universities, research institutions and companies. A coordinated effort by 7 beneficiaries and 14 partner organisations from 8 European countries (Belgium, France, Germany, Greece, The Netherlands, United Kingdom, Spain, Sweden) provides a pan-European multidisciplinary approach in multiple environments (universities, research centres, SMEs, large civil organisations and companies) and across multiple sectors (education, industry, health care).

The aim of Health CASCADE is to foster the next generation of highly-trained research leaders to develop evidence based guiding principles, novel tools and new technologies to make co-creation an effective tool to fight complex public health problems through a European Joint Doctoral Programme. Within Health CASCADE, there are a total of eight work packages (WP).

WP 1 is in charge of sharing knowledge about co-creation evaluation. WP2 is in charge of the technologies that will enable co-creation. WP3-6 intends to encourage co-creation in a variety of areas. WP7 focuses on early stage researcher training and development, while WP8 focuses on CASCADE training. This project is part of WP 5 Health Care and aims to co-create an eHealth tool for HPs and people with chronic obstructive pulmonary disease, COPD, in a hospital context. 

Background

Chronic obstructive pulmonary disease (COPD) is one of the most common chronic diseases in Sweden and the third most common cause of death globally. Non-pharmacological treatment, like pulmonary rehabilitation (PR), is highly recommended in treatment guidelines for people with COPD regardless of whether they are in a stable state or are having an AECOPD.

Despite a convincing base of evidence, only a minority of the COPD population in Sweden has access to hospital-based PR and the knowledge about its effects is low, both among healthcare professionals and people with COPD. We have previously, by using co-creation with people with stable COPD, developed an eHealth tool “Me & COPD” (Swedish: Min KOL) which is built on the national primary health care support platform, 1177 Vårdguiden - Stöd och Behandling.

In this study, we plan to develop a sustainable eHealth strategy for the care of people with COPD with frequent exacerbations through a co-creation process with stakeholders, i.e. patients having experienced hospitalization due to exacerbations in their COPD, caregivers, healthcare professionals (occupational therapists, physicians, nurses, dietitians, physiotherapists), managers, and policy-makers. ​

Senast uppdaterad: 2022-12-09